2009-04-06

Epidermolysis Bullosa Medical Research Foundation

On 26th March 2007, at Beso restaurant in Los Angeles, Orlando attended a dinner to raise funds for the Epidermolysis Bullosa Medical Research Foundation.
The EBMRF was joined by celebrity supporters Jennifer Aniston, Orlando Bloom , Courteney Cox, Eva Longoria, Kate Beckinsale, James Marsden, Jessica & Ashlee Simpson, Casey Affleck, Rashida Jones, Eve and others to celebrate the launch of their GivEBig campaign to raise $1 million. Thanks to Stiefel Laboratories' generous donation, the night was a huge success! Executive Vice President, Todd Stiefel, made the surprise announcement at the event via phone to co-host Ken Paves, confirming that the Company would match any donations up to $1 million. The private event was held at Beso in Hollywood and brought out supporters for an evening of good food, good music and giving back. The event, which was filmed for Oprah, was highlighted on her show the following week and helped bring EB into the spotlight.

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Epidermolysis Bullosa is an incurable genetic disorder that causes skin to become as fragile and easily torn as tissue paper.
Epidermolysis Bullosa Medical Research Foundation is a volunteer, non profit foundation dedicated to helping mediacl scientists learn more about EB, its causes, the development of successful treatments and, ultimately, its cure.
For more informations about the Foundation, give a look at:
http://www.ebkids.org/index.php

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